I posted this about a month ago but it somehow slipped under the radar. I don't think it ever made it out into the cyber world. So, here's Henley's story one more time.
Help!
I've met someone who's stolen a part of my heart!
Every now and then someone or something comes along that really grabs our attention, you know?
Everyone has a story and it's only a click away.
Meet Miss Henley.
Henley is a little girl with some big issues to deal with.
Wait a minute Dip, you say. We've all got plenty of 'issues' to deal with, you say. Yeah, well, we do have plenty on our collective plates and Lord knows it just keeps getting piled deeper but like I said a few lines ago, every now and then someone comes along that stops us in our tracks.
Someone who in the blink of an eye puts things into perspective.
-From the Brave Campaign web site, a site dedicated to helping Henley:
"Henley is the sweetest 7 year old you may ever meet. Through all of her pain she is constantly smiling. Henley was diagnosed with Chiari Malformation at 9 months old and began having significant neurological symptoms at 18 months old. She suffered a major round of seizures in October 2011 and was hospitalized for several days to undergo extensive testing. In December 2011, she was diagnosed with an extremely rare genetic deletion called 16p11.2 which causes neuromuscular, speech and learning difficulties. At this time she is one of only about 500 people in the world to share this same diagnosis. Henley's health began declining rapidly from age 20 months - 25 months and she underwent brain surgery in January 2012 in an attempt to relieve her symptoms. Most of the symptoms resolved following the surgery and it appeared that all was well. "
"Appeared that all was well."
Henley is now preparing for her second brain surgery that happens on March 8th, 2017 in New York.
That's a long way from the Lone Star state where this sweet little Texan lives but that's where the best doctors are.
Please check this link to Brave Campaign where you can read Henley's brave story. Another place to get to know her is Caring Bridge where you can read a blog her mom updates and leave a message of your own if you'd like.
Now, I've never asked anyone to "share" anything on social media. Ever. But if these few words, written on behalf of this little girl have found their way to your heart, and if her story has touched you like it has me and so many others please, please share this post anywhere and everywhere you can think of.
And if you're inclined, please keep this girl, her family and her doctors in your prayers
Thanks
dM
Help!
I've met someone who's stolen a part of my heart!
Every now and then someone or something comes along that really grabs our attention, you know?
Everyone has a story and it's only a click away.
Meet Miss Henley.
Henley is a little girl with some big issues to deal with.
Wait a minute Dip, you say. We've all got plenty of 'issues' to deal with, you say. Yeah, well, we do have plenty on our collective plates and Lord knows it just keeps getting piled deeper but like I said a few lines ago, every now and then someone comes along that stops us in our tracks.
Someone who in the blink of an eye puts things into perspective.
-From the Brave Campaign web site, a site dedicated to helping Henley:
"Henley is the sweetest 7 year old you may ever meet. Through all of her pain she is constantly smiling. Henley was diagnosed with Chiari Malformation at 9 months old and began having significant neurological symptoms at 18 months old. She suffered a major round of seizures in October 2011 and was hospitalized for several days to undergo extensive testing. In December 2011, she was diagnosed with an extremely rare genetic deletion called 16p11.2 which causes neuromuscular, speech and learning difficulties. At this time she is one of only about 500 people in the world to share this same diagnosis. Henley's health began declining rapidly from age 20 months - 25 months and she underwent brain surgery in January 2012 in an attempt to relieve her symptoms. Most of the symptoms resolved following the surgery and it appeared that all was well. "
"Appeared that all was well."
Henley is now preparing for her second brain surgery that happens on March 8th, 2017 in New York.
That's a long way from the Lone Star state where this sweet little Texan lives but that's where the best doctors are.
Please check this link to Brave Campaign where you can read Henley's brave story. Another place to get to know her is Caring Bridge where you can read a blog her mom updates and leave a message of your own if you'd like.
Now, I've never asked anyone to "share" anything on social media. Ever. But if these few words, written on behalf of this little girl have found their way to your heart, and if her story has touched you like it has me and so many others please, please share this post anywhere and everywhere you can think of.
And if you're inclined, please keep this girl, her family and her doctors in your prayers
Thanks
dM
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